Welcome! New to blogging!

A few weeks ago I was sitting on my bed, the twins were getting their feeding (read about me to learn more or other posts coming 😊), and I was really just procrastinating and putting off doing all the housework and laundry that needed to be done. As a stay at home mom now, I find myself a lot of days procrastinating 😂. Looking at these pictures below, I laugh because this is exactly what I feel like my life looks like with 7 in a house and 2 medically complex special needs twins! Whew!

Anyway, that could get me on an even longer topic that will come in later posts! Stay tuned! So, as I sit here and I am scrolling down Pinterest waiting for something to catch my eye, a post came up that was talking about how to get started blogging and how to make money doing it. I know what you are thinking…. “Ohhh, she is just seeing dollar signs💰💰”… ACTUALLY it was quite the opposite. Now yes I did read the post and then followed it as my guide to this start up but making money off of this blog is not my main goal.

MAIN GOAL and FOCUS

To understand my main goal and focus of creating a blog and enjoying it in the middle of my crazy and chaotic lifestyle (or an attempt, you may still say I’m crazy and I am a little aren’t we all?), we have to start back at September 22,2023. Now because that was 1 year and 6 months ago, we will go the shorter version. Back on this day, I was 28 weeks pregnant with identical twin boys, Walker and Wyatt, which at 9am turned into getting to bring two sweet 2lb babies into the world. This would bring a long 70 day NICU stay and bring lots of CARE and CHAOS in the next year and a half. During this last year so much has changed in our lives. I went from working 5-6 days a week as an RN and then hospice liaison RN to being a full time stay at home mom/nurse. Our family also went from a family with 3 wild kids who were 7, 4, and 2 at the time, to adding these two small babies who came home from the NICU weighing 5lbs each. Life for our children changed as mom and dad have to spend more time with the twins because they are medically complex and are delayed developmentally and fully tube fed. If you ask me or the kids, would we change it for the world? Every one of us would say NO! It has been huge changes but we have learned so much and met so many AMAZING PEOPLE along the way!

So with all of this life change and busy life that we just encountered, made me think taking on another task like a blog was a good idea?

Over the last year and six months, I have cried and laughed and asked why more times than I can count. With all of the tears and heartbreak that we have had over the last 18 months, I have learned so much more about Special Needs, Medically Complex Children, disability and so much more. I have lived through the lack of care in the beginning. I have lived through the unknowns and wanting answers, and doctors act like you are crazy. I have fought more times for the twins to get what they need than I have ever had to with my older 3 children. During this time, I have also joined many mom groups and online groups for special needs/medically complex children that MOST of the moms in the groups have been through already or are going through what I am going through. As a nurse, I am always for advocating for the patient and making sure they get the best treatments possible no matter who they are! No matter poor or rich, insurance or not, black or white, male or female, young or old, healthy and unhealthy, everyone deserves to be treated the same way and everyone deserves to have the same education and help! Meeting so many new people, whether therapists that come to our house for the twins, or doctors, or other moms, I am learning that there are so many people out there that don’t know how to advocate for themselves or their children. There are people who don’t know how to ask for something they need or how to ask a question they may have. There are people who also don’t understand the community of special needs and medically complex children ( and adults). There are people who believe that every Down syndrome child or muscular dystrophy child looks the same way because we haven’t ever been taught differently. I want to change that! I want to help advocate for others and my children. I want to try and help inspire other moms in my position or in positions similar to mine to stand up and advocate, you are the mom and you know your child better than anyone! I want to educated people on the time and care that it takes for these type children. In the end, I hope that I can give hope and encouragement to another mom out there, who may be going through what I am. I hope to give hopes to other moms to hold your head up and fight for what you believe!

I can’t wait to see where this blog takes us! I hope you love this blog and all its random, honest self!